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Ethics
Related glossaries include: American Journal of Bioethics, Bioethics.net
http://ajobonline.com/
American Journal of Bioethics Online
Bermuda principles: Agreed upon
coordinated rapid release of data into the public domain. Summary
of principles agreed at the International Strategy Meeting on Human Genome
Sequencing, Bermuda, 25th- 28th February 1996. Wikipedia http://en.wikipedia.org/wiki/Bermuda_Principles clinical trials- ethics:
Bioethics Resources on the web, Medicine and health care, Ethics and
clinical trials, 2007 25 plus websites http://bioethics.od.nih.gov/ethics_clinical_trials.html
ELSI: Ethical, Legal and Social Issues
genetic privacy:
Genetics
Privacy and Legislation, HGMIS, DOE, US http://www.ornl.gov/TechResources/Human_Genome/elsi/legislat.html
Guidelines on Good
Publication Practice, Committee on Publication Ethics, 2002 http://www.publicationethics.org.uk/cope2002/pdf2002/21330_pp48_52.pdf
informed consent:
Health & Human Services http://www.hhs.gov/ohrp/policy/consent/index.html
Intellectual property:
Intellectual
property
international and non-US bioethics organizations:
Bioethics
Resources on the web, US National Institutes of Health http://www.nih.gov/sigs/bioethics/international.html
International Bioethics Committee, UNESCO
http://portal.unesco.org/shs/en/ev.php-URL_ID=1879&URL_DO=DO_TOPIC&URL_SECTION=201...l
Minorities, race and Genetics: Human
Genome Project Information, DOE, US http://www.ornl.gov/TechResources/Human_Genome/elsi/minorities.html
NIH Bioethics on the web
http://www.nih.gov/sigs/bioethics/
neuroethics:
The ethics of neuroscience ... encompasses a wide array of ethical issues
emerging from different branches of clinical neuroscience (neurology,
psychiatry, psychopharmacology) and basic neuroscience (cognitive neuroscience,
affective neuroscience). These include ethical
problems raised by advances in functional neuroimaging, brain implants and
brain- machine interfaces and psychopharmacology as well as by our growing
understanding of the neural bases of behavior, personality, consciousness, and
states of spiritual transcendence. Neuroethics, University of
Pennsylvania, http://www.neuroethics.upenn.edu/
Nuffield Council on Bioethics, Nuffield Trust, Wellcome Foundation,
Medical Research Council http://www.nuffieldbioethics.org/home/
Ethical issues arising from developments in medicine and biology.
Current projects include donor conception, novel neurotechnologies and emerging
biotechnologies such as synthetic biology and nanotechnology. Policy
and ethics, NHGRI, US http://www.genome.gov/PolicyEthics/
Precautionary Principle,
http://en.wikipedia.org/wiki/Precautionary_principle President's Council on Bioethics, US http://www.bioethics.gov/
Reports and background information on cloning, stem cells, genetic enhancement,
patenting human life, biotechnology and public policy, sex selection.
Bibliography
Evolving Terminology for Emerging Technologies
Comments? Questions?
Revisions? mchitty@healthtech.com
Last revised November 12, 2012
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Applications: Business of biopharmaceuticals
Molecular Medicine Cancer
genomics Clinical trials
Genetic & genomic testing Pharmacogenomics
Regulatory Affairs
CDC Ethics Home Page
http://www.cdc.gov/od/ethics/default.htm
ELSI NHGRI, National Human Genome Research Institute,
NIH, US http://www.nhgri.nih.gov/ELSI/
ELSI NIEHS, National Institute of Environmental Health Sciences,
NIH, US http://www.niehs.nih.gov/envgenom/elsi.htm
Ethical, legal & social issues,
DOE Human Genome Project, Oak Ridge National Lab, US http://www.ornl.gov/hgmis/elsi/elsi.html
Ethical, legal & social issues Research
DOE, Human Genome Project, Oak Ridge National Lab, US http://www.ornl.gov/hgmis/research/elsi.html
Institutional
Review Board Glossary, Office Human Research Protection, HHS, US, http://www.hhs.gov/ohrp/archive/irb/irb_glossary.htm
Portions now outdated.
Kennedy Institute of Ethics, Georgetown Univ.
National Information Resource on Ethics and Human Genetics http://genethx.georgetown.edu/
NIH, Bioethics
Resources on the Web http://www.nih.gov/sigs/bioethics/index.html
President's
Council on Bioethics, http://www.bioethics.gov/
Roberts,
Alan, Language of Bioethics, Medical College of Georgia,
2001, 40 plus definitions http://www.mcg.edu/gpi/ethics/ph1sylbus/bioethic.htm#Capacity
What HHS can do for your family http://www.mastersinhealthcare.com/blog/2012/hhs-for-your-family/